First Entry

One month from yesterday, my little miracle will be getting his kidney transplant from his daddy.  I have been on such an emotional rollercoaster of emotions.  I am so excited that we will finally be free of dialysis, dressing changes, not being able to go swimming or even into the bathtub but then I have feelings of nervousness and anxiety on the unknown. I know that God has carried us so far in the last 4 years and we will continue to feel his presence in the future. For those families that have been given the diagnosis of having a baby with LUTO, please know that there is a light at the end of the tunnel. I am not going to lie to you and tell you it is an easy road to travel. Please be ready for a lot of emotional ups and downs, but in the end you will have a beautiful baby that you will treasure more than any other treasure in the world. Please know that our family will be here for you in any way we can. The last four years have been a true test of faith, belief in a higher power, and commitment to family and I wouldn't change a thing.  It has made me a stronger person both spiritually and emotionally.